A qualitative, grounded theory exploration of patients’ experience of early mobilisation, rehabilitation and recovery after critical illness

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Title: A qualitative, grounded theory exploration of patients’ experience of early mobilisation, rehabilitation and recovery after critical illness
Authors: Corner, EJ
Murray, EJ
Brett, SJ
Item Type: Journal Article
Abstract: Rationale Physical rehabilitation (encompassing early mobilisation) of the critically ill patient is recognised best practice; however, further work is needed to explore the patients’ experience of rehabilitation qualitatively; a better understanding may facilitate implementation of early rehabilitation and elucidate the journey of survivorship. Objectives To explore patient experience of physical rehabilitation from critical illness during and after a stay on intensive care unit (ICU). Design Exploratory grounded theory study using semistructured interviews. Setting Adult medical/surgical ICU of a London teaching hospital. Participants A purposive sample of ICU survivors with intensive care unit acquired weakness (ICUAW) and an ICU length of stay of >72 hours. Analysis Data analysis followed a four-stage constant comparison technique: open coding, axial coding, selective coding and model development, with the aim of reaching thematic saturation. Peer debriefing and triangulation through a patient support group were carried out to ensure credibility. Main results Fifteen people were interviewed (with four relatives in attendance). The early rehabilitation period was characterised by episodic memory loss, hallucinations, weakness and fatigue, making early rehabilitation arduous and difficult to recall. Participants craved a paternalised approach to care in the early days of ICU. The central idea that emerged from this study was recalibration of the self. This is driven by a lost sense of self, with loss of autonomy and competence; dehumanised elements of care may contribute to this. Participants described a fractured life narrative due to episodic memory loss, meaning that patients were shocked on awakening from sedation by the discrepancy between their physical form and cognitive representation of themselves. Conclusions Recovery from ICUAW is a complex process that often begins with survivors exploring and adapting to a new body, followed by a period of recovering autonomy. Rehabilitation plays a key role in this recalibration period, helping survivors to reconstruct a desirable future.
Issue Date: 24-Feb-2019
Date of Acceptance: 18-Jan-2019
ISSN: 2044-6055
Publisher: BMJ Journals
Journal / Book Title: BMJ Open
Volume: 9
Copyright Statement: © Author(s) (or their employer(s)) 2019. Re-use permitted under CC BY-NC. No commercial re-use. See rights and permissions. Published by BMJ. This is an open access article distributed in accordance with the Creative Commons Attribution Non Commercial (CC BY-NC 4.0) license, which permits others to distribute, remix, adapt, build upon this work non-commercially, and license their derivative works on different terms, provided the original work is properly cited, appropriate credit is given, any changes made indicated, and the use is non-commercial. See:
Sponsor/Funder: Westminster Medical School Research Trust
Funder's Grant Number: PMS/MMS-13/14-4083 (NEXSTAR)
Publication Status: Published
Article Number: e026348
Appears in Collections:Division of Surgery
Faculty of Medicine

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