An analysis of first-time enquirers to the CancerBACUP information service: variations with cancer site, demographic status and geographical location

Title: An analysis of first-time enquirers to the CancerBACUP information service: variations with cancer site, demographic status and geographical location
Author(s): Boudioni, M
McPherson, K
Mossman, J
Boulton, M
Jones, AL
King, J
Wilson, E
Slevin, ML
Item Type: Journal Article
Abstract: A retrospective comparison of cancer incidence data and, where relevant, population data with 16,955 first-time users (patients, relatives and friends) of a national cancer information service (CancerBACUP) during the period April 1995 to March 1996 is presented. The number of events observed was compared with the number of events expected, were the national rates of cancer incidence and population demographics apply. Standardized incidence ratios (SIRs) (observed-expected ratios) were used to indicate any differences. Statistically significant differences (P < 0.001) in the observed and expected sex, age and primary site distribution of patients enquired about were found. Statistically significant differences (P < 0.001) were also identified for the age, employment status, socioeconomic class and geographical location of first-time enquirers (patients, relatives and friends). Enquiries about brain, testis and breast cancers and non-Hodgkins lymphoma (NHL) were substantially higher than expected; enquiries about bladder, lung, stomach and colorectal cancers were much lower than expected. As the service is provided via a freephone number, it is available to all, and users might be expected to be randomly distributed across the variables listed. The underlying reasons for the differences identified need to be investigated, and the role of information in the care of cancer patients should be formally evaluated.
Publication Date: 11-Dec-1998
Date of Acceptance: 17-May-1998
URI: http://hdl.handle.net/10044/1/33393
DOI: http://dx.doi.org/10.1038/sj.bjc.6690023
ISSN: 1532-1827
Publisher: Cancer Research UK
Start Page: 138
End Page: 145
Journal / Book Title: British Journal of Cancer
Volume: 79
Issue: 1
Copyright Statement: © 1999 Cancer Research Campaign
Keywords: Adult
Aged
Demography
Female
Great Britain
Humans
Incidence
Information Services
Male
Middle Aged
Neoplasms
Humans
Neoplasms
Incidence
Demography
Information Services
Adult
Aged
Middle Aged
Great Britain
Female
Male
Oncology & Carcinogenesis
1112 Oncology And Carcinogenesis
Publication Status: Published
Appears in Collections:Faculty of Medicine
Epidemiology, Public Health and Primary Care



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