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ReIMAGINE: a prostate cancer research consortium with added value through its patient and public involvement and engagement

Title: ReIMAGINE: a prostate cancer research consortium with added value through its patient and public involvement and engagement
Authors: Green, S
Tuck, S
Long, J
Green, T
Green, A
Ellis, P
Haire, A
Moss, C
Cahill, F
McCartan, N
Brown, L
Santaolalla, A
Marsden, T
Justo, MR
Hadley, J
Punwani, S
Attard, G
Ahmed, H
Moore, CM
Emberton, M
Van Hemelrijck, M
Item Type: Journal Article
Abstract: BACKGROUND: ReIMAGINE aims to improve the current prostate specific antigen (PSA)/biopsy risk stratification for prostate cancer (PCa) and develop a new image-based method (with biomarkers) for diagnosing high/low risk PCa in men. ReIMAGINE's varied patient and public involvement (PPI) and engagement (PE) strategy maximises the impact of its scientific output by informing and shaping the different stages of research. AIMS: Through including the voice of patients and the public, the ReIMAGINE Consortium aims to translate these different perspectives into the design and implementation process. This will improve the overall quality of the research by: reflecting the needs and priorities of patients and the public, ensuring methods and procedures are feasible and appropriate ensuring information is relevant and accessible to those being recruited to the study identifying dissemination channels relevant to patients/the public and developing outputs that are accessible to a lay audience With support from our patient/user groups, the ReIMAGINE Consortium aims to improve our ability to derive prognostic information and allocate men to the most appropriate and effective therapies, using a novel image-based risk stratification with investigation of non-imaging biomarkers. FINDINGS: We have been working with patients and the public from initiation of the project to ensure that the research is relevant to men and their families. Our PPI Sub-Committee, led by a PCa patient, has been involved in our dissemination strategy, outreach activities, and study design recommendations. For example, the sub-committee have developed a variety of informative videos relevant and accessible to those being recruited, and organised multiple online research engagement events that are accessible to a lay audience. As quoted by one of the study participants, "the more we present the benefits and opportunities to patients and the public, the more research commitment we obtain, and the sooner critical clinical questions such as PCa diagnostics will be addressed".
Issue Date: 17-Nov-2021
Date of Acceptance: 27-Oct-2021
URI: http://hdl.handle.net/10044/1/93504
DOI: 10.1186/s40900-021-00322-w
ISSN: 2056-7529
Publisher: BioMed Central
Journal / Book Title: Research Involvement and Engagement
Volume: 7
Issue: 1
Copyright Statement: © The Author(s) 2021. This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons licence, and indicate if changes were made. The images or other third party material in this article are included in the article's Creative Commons licence, unless indicated otherwise in a credit line to the material. If material is not included in the article's Creative Commons licence and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this licence, visit http://creativecommons.org/licenses/by/4.0/. The Creative Commons Public Domain Dedication waiver (http://creativecommons.org/publicdomain/zero/1.0/) applies to the data made available in this article, unless otherwise stated in a credit line to the data.
Sponsor/Funder: Medical Research Council (MRC)
Medical Research Council (MRC)
Funder's Grant Number: WSST_P70374
EP/V520354/1
Keywords: Cancer
Patient and public engagement
Patient and public involvement
Prostate cancer
Study design
Cancer
Patient and public engagement
Patient and public involvement
Prostate cancer
Study design
Publication Status: Published
Conference Place: England
Article Number: ARTN 81
Appears in Collections:Department of Surgery and Cancer



This item is licensed under a Creative Commons License Creative Commons