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Implementation of patient-reported outcomes (PROMs) from specialist pain clinics in England and Wales: experience from a nationwide study

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Title: Implementation of patient-reported outcomes (PROMs) from specialist pain clinics in England and Wales: experience from a nationwide study
Authors: Price, CM
C de C Williams, A
Smith, BH
Bottle, A
Item Type: Journal Article
Abstract: INTRODUCTION: Evaluating outcomes in routine clinical practice is a significant challenge for specialist pain clinics due to the complexity of interventions provided and the subjective nature of pain. This study reports findings from implementation of Patient Reported Outcomes (PROMs) in pain clinics in England and Wales between 2011 and 2013. METHODS: A paper-based questionnaire was administered at a first appointment in participating centres. This assessed quality of life, experience of health care and health care usage with postal follow-up at 6 and 12 months by the research team. Feasibility was assessed in terms of response rates, completion rates and outcomes. RESULTS: Ninety-one (56%) clinics participated, entering 9,588 patients (19% of those eligible). For responders, there was a 92% item completion rate. The dropout rate was high, 46% and 19% returned questions at 6 and 12 months, respectively. Quality of life at baseline was low, with a mean EQ5D-3L Time Trade Off value of 0.32. Amongst responders at 12 months, 92% continued to experience significant pain. For those with planned discharges 30% achieved the Minimal Important Change for quality of life. Nonetheless, 70% reported positive experiences of care. CONCLUSIONS: Patients attending UK pain clinics report an extraordinarily poor quality of life and difficulty with understanding their condition. Problems with PROMs implementation included initial recruitment, follow-up response rates, classification systems and benchmarking. Successful implementation should include use of electronic data capture, feedback and focus on gradual improvement. To achieve this would require extended periods of funding. SIGNIFICANCE: No nationwide evaluation of the effectiveness of specialist pain clinics had previously been attempted. Comparison of patient outcomes from services enables improvement. This work provides a platform to improve methods of routine PROMs capture in pain clinics, measure clinical effectiveness and identify areas for potential research.
Issue Date: 1-Aug-2019
Date of Acceptance: 17-Apr-2019
URI: http://hdl.handle.net/10044/1/71117
DOI: 10.1002/ejp.1406
ISSN: 1532-2149
Publisher: Wiley
Start Page: 1368
End Page: 1377
Journal / Book Title: European Journal of Pain
Volume: 23
Issue: 7
Copyright Statement: © 2019 European Pain Federation ‐ EFIC®
Keywords: Science & Technology
Life Sciences & Biomedicine
Anesthesiology
Clinical Neurology
Neurosciences
Neurosciences & Neurology
IMPORTANT DIFFERENCE
VALIDATION
EQ-5D
CARE
REGISTRIES
INVENTORY
STATEMENT
SERVICES
QUALITY
TRIALS
Anesthesiology
1103 Clinical Sciences
1109 Neurosciences
1115 Pharmacology and Pharmaceutical Sciences
Publication Status: Published
Conference Place: England
Online Publication Date: 2019-04-26
Appears in Collections:School of Public Health