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Availability, access, analysis and dissemination of small area data

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Title: Availability, access, analysis and dissemination of small area data
Authors: Hodgson, S
Fecht, D
Gulliver, J
Daby, H
Piel, F
Yip, F
Strosnider, H
Hansell, A
Elliott, P
Item Type: Journal Article
Abstract: In this era of ‘big data’, there is growing recognition of the value of environmental, health, social and demographic data for research. Open government data initiatives are growing in number and in terms of content. Remote sensing data are finding widespread use in environmental research, including in low- and middle-income settings. While our ability to study environment and health associations across countries and continents grows, data protection rules and greater patient control over the use of their data present new challenges to using health data in research. Innovative tools that circumvent the need for the physical sharing of data by supporting non-disclosive sharing of information, or that permit spatial analysis without researchers needing access to underlying patient data can be used to support analyses while protecting data confidentiality. User-friendly visualisations, allowing small area data to be seen and understood by non-expert audiences are revolutionising public and researcher interactions with data. The UK Small Area Health Statistics Unit’s Environment and Health Atlas for England and Wales, and the US National Environmental Public Health Tracking Network offer good examples. Open data facilitates user-generated outputs, and ‘mash-ups’, and user generated inputs from social media, mobile devices, and wearable tech are new data streams which will find utility in future studies, and bring novel dimensions with respect to ethical use of small area data.
Issue Date: 15-Apr-2020
Date of Acceptance: 27-Feb-2019
URI: http://hdl.handle.net/10044/1/68187
DOI: 10.1093/ije/dyz051
ISSN: 1464-3685
Publisher: Oxford University Press (OUP)
Start Page: i4
End Page: i14
Journal / Book Title: International Journal of Epidemiology
Volume: 49
Issue: Supplement_1
Copyright Statement: © The Author(s) 2020. Published by Oxford University Press on behalf of the International Epidemiological Association. This is an Open Access article distributed under the terms of the Creative Commons Attribution License (http://creativecommons.org/licenses/by/4.0/), which permits unrestricted reuse, distribution, and reproduction in any medium, provided the original work is properly cited.
Sponsor/Funder: Medical Research Council (MRC)
Public Health England
Funder's Grant Number: MR/L01341X/1
Keywords: Small-area studies
environment and health
open data
remote sensing
0104 Statistics
1117 Public Health and Health Services
Publication Status: Published
Appears in Collections:Grantham Institute for Climate Change
School of Public Health