Survey of patient and public perceptions of electronic health records for healthcare, policy and research: Study protocol
Author(s)
Type
Journal Article
Abstract
Background: Immediate access to patients’ complete health records via electronic databases could improve
healthcare and facilitate health research. However, the possible benefits of a national electronic health records
(EHR) system must be balanced against public concerns about data security and personal privacy. Successful
development of EHR requires better understanding of the views of the public and those most affected by EHR:
users of the National Health Service. This study aims to explore the correlation between personal healthcare
experience (including number of healthcare contacts and number and type of longer term conditions) and views
relating to development of EHR for healthcare, health services planning and policy and health research.
Methods/design: A multi-site cross-sectional self-complete questionnaire designed and piloted for use in waiting
rooms was administered to patients from randomly selected outpatients’ clinics at a university teaching hospital
(431 beds) and general practice surgeries from the four primary care trusts within the catchment area of the
hospital. All patients entering the selected outpatients clinics and general practice surgeries were invited to
take part in the survey during August-September 2011. Statistical analyses will be conducted using descriptive
techniques to present respondents’ overall views about electronic health records and logistic regression to explore
associations between these views and participants’ personal circumstances, experiences, sociodemographics and
more specific views about electronic health records.
Discussion: The study design and implementation were successful, resulting in unusually high response rates and
overall recruitment (85.5%, 5336 responses). Rates for face-to-face recruitment in previous work are variable, but
typically lower (mean 76.7%, SD 20). We discuss details of how we collected the data to provide insight into how
we obtained this unusually high response rate.
healthcare and facilitate health research. However, the possible benefits of a national electronic health records
(EHR) system must be balanced against public concerns about data security and personal privacy. Successful
development of EHR requires better understanding of the views of the public and those most affected by EHR:
users of the National Health Service. This study aims to explore the correlation between personal healthcare
experience (including number of healthcare contacts and number and type of longer term conditions) and views
relating to development of EHR for healthcare, health services planning and policy and health research.
Methods/design: A multi-site cross-sectional self-complete questionnaire designed and piloted for use in waiting
rooms was administered to patients from randomly selected outpatients’ clinics at a university teaching hospital
(431 beds) and general practice surgeries from the four primary care trusts within the catchment area of the
hospital. All patients entering the selected outpatients clinics and general practice surgeries were invited to
take part in the survey during August-September 2011. Statistical analyses will be conducted using descriptive
techniques to present respondents’ overall views about electronic health records and logistic regression to explore
associations between these views and participants’ personal circumstances, experiences, sociodemographics and
more specific views about electronic health records.
Discussion: The study design and implementation were successful, resulting in unusually high response rates and
overall recruitment (85.5%, 5336 responses). Rates for face-to-face recruitment in previous work are variable, but
typically lower (mean 76.7%, SD 20). We discuss details of how we collected the data to provide insight into how
we obtained this unusually high response rate.
Date Issued
2012-05-23
Date Acceptance
2012-04-10
Citation
BMC Medical Informatics and Decision Making, 2012, 12
ISSN
1472-6947
Publisher
BioMed Central
Journal / Book Title
BMC Medical Informatics and Decision Making
Volume
12
Copyright Statement
© 2012 Luchenski et al.; licensee BioMed Central Ltd. This is an Open Access article distributed under the terms of the Creative
Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and
reproduction in any medium, provided the original work is properly cited.
Commons Attribution License (http://creativecommons.org/licenses/by/2.0), which permits unrestricted use, distribution, and
reproduction in any medium, provided the original work is properly cited.
License URL
Subjects
Science & Technology
Life Sciences & Biomedicine
Medical Informatics
MEDICAL INFORMATICS
Electronic Health Records
Patient and Public Perceptions
Quality Improvement
Publication Status
Published
Article Number
40