Understanding the impact of urinary incontinence in persons with dementia: development of an interdisciplinary service model
Author(s)
Juliebø-Jones, Patrick
Coulthard, Elizabeth
Mallam, Elizabeth
Archer, Hilary
Drake, Marcus J
Type
Journal Article
Abstract
Introduction: Prevalence of urinary symptoms such as incontinence (UI) in patients with dementia is estimated to exceed 50%. The resultant psychological and socio-economic burden can be substantial. Our aim was to develop a dedicated urology service within a cognitive impairment clinic in order to treat and better understand the bothersome urinary symptoms suffered by persons with dementia.Methods: Patients attending this clinic were invited to be assessed and interviewed by urologist, together with their family and/or carer. In addition, formal history, examination and relevant investigations, themes of importance such as quality of life, and select question items were drawn from validated questionnaires. Multidisciplinary team (MDT) meeting was carried out on the same day. Outcomes of the first 75 patients with UI and dementia have been reported.Results: Average age was 70 years (range 58-98). Majority of persons had a diagnosis of Alzheimer’s disease (n = 43, 57%). Average score for how much urine leakage interferes with everyday life was 7.7/10 (range 2-10). 58.7% (n = 44) revealed some degree of sleep disturbance due to UI. 83% (n = 62) stated daily activities were limited due to UI. Two-thirds of persons with dementia (n = 50) stated their bladder problem makes them feel anxious. 88% (n = 67) felt the topic was socially embarrassing. All carers stated that the person’s continence issues affect the care they provide. Less than one-third of carers (30.7%, n = 23) were aware of or had been in contact with any bladder and bowel community service. More than half of the carers (n = 46, 65%) were concerned incontinence may be a principal reason for future nursing home admission.Conclusion: UI can be distressing for persons with dementia. Care partners were concerned about loss of independence and early nursing home admission. Awareness of bladder and bowel services should be increased.
Date Issued
2021-06-21
Date Acceptance
2021-06-08
Citation
Advances in Urology, 2021, 2021, pp.1-6
ISSN
1687-6369
Publisher
Hindawi Limited
Start Page
1
End Page
6
Journal / Book Title
Advances in Urology
Volume
2021
Copyright Statement
Copyright © 2021 Patrick Juliebø-Jones et al. +is is an open access article distributed under the Creative Commons Attribution
License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is
properly cited.
License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is
properly cited.
License URL
Identifier
https://www.hindawi.com/journals/au/2021/9988056/
Notes
Funding Information: Patrick Julieb?-Jones had his salary funded by the National Institute of Health Research (NIHR). Publisher Copyright: © 2021 Patrick Juliebø-Jones et al.
Publication Status
Published
Article Number
9988056
Date Publish Online
2021-06-21