Adolescent and caregivers' experiences of electronic adherence assessment in paediatric problematic severe asthma
File(s)
Author(s)
Stewart, Amy C
Gannon, Kenneth N
Beresford, Fran
Fleming, Louise
Type
Journal Article
Abstract
This study explored the experiences of adolescents and their caregivers regarding adherence to inhaled corticosteroids which are assessed through an electronic monitoring device (EMD). These devices are increasingly being used for assessing medication adherence, yet there is little information about patient's experience of these tools. Semi-structured interviews were conducted with eight adolescents with severe asthma, aged 11-15 years, who were electronically monitored as part of their care, along with their caregivers. Interviews were analysed using thematic analysis. Three themes were identified: 'they were trying to help me get better', 'checking up and catching out' and 'who is responsible?' The themes highlighted differences in priorities between participant groups, the impact of monitoring on the healthcare relationship and the dilemma of transferring responsibility for asthma management to adolescents. The findings suggest it is important for healthcare professionals to engage with patient's preferences and priorities when introducing EMDs.
Date Issued
2018-06-01
Date Acceptance
2018-01-01
Citation
Journal of Child Health Care, 2018, 22, pp.238-250
ISSN
1367-4935
Publisher
SAGE Publications
Start Page
238
End Page
250
Journal / Book Title
Journal of Child Health Care
Volume
22
Copyright Statement
© The Author(s) 2018. The final, definitive version of this paper has been published in Journal of Child Health Care by Sage Publications Ltd. All rights reserved. It is available at: http://journals.sagepub.com/doi/10.1177/1367493517753082
Sponsor
Asthma UK
Grant Number
AUK-IG-2014-284
Subjects
Adherence
child health
decision-making
management
technology
Publication Status
Published
Date Publish Online
2018-01-11