TB has long-term health and social sequelae. The experiences of TB survivors are not well understood and there is limited evidence around gaps in care. This article aims to provide a comprehensive overview of qualitative research on post-TB sequelae and care, to identify knowledge gaps and inform future research and interventions to support person-centred care.

A systematic search strategy, using two search strings incorporating post-TB and TB-related chronic respiratory disease. Searches were conducted on PubMed, Web of Science and CINAHL. Sources were screened systematically, data extracted independently and analyzed thematically.

Sixty-six sources were identified. After applying exclusion/inclusion criteria, 16 articles were included in a qualitative synthesis. Key themes included the physical, psychological, economic and social impacts of TB. These included threats to TB survivors’ social role. People who suffer from long-term sequelae are stigmatised. Access to care is limited and tends to focus on acute respiratory disease. Policymakers indicate that the lack of data regarding the long-term impacts of TB contributed to insufficient resources being allocated.

This systematic review underscores the post-TB physical and psychological impacts and the complexity of post-TB sequelae; it emphasizes the urgent need for evidence regarding the long-term impact of TB sequelae to improve care.