The time is now: achieving FH paediatric screening across Europe - the Prague declaration
Author(s)
Type
Journal Article
Abstract
Familial hypercholesterolaemia (FH) is the most common inherited metabolic disorder characterized by high cholesterol and if left untreated leads to premature cardiovascular disease, such as heart attacks. Treatment that begins early in life, particularly in childhood, is highly efficacious in preventing cardiovascular disease and cost-effective, thus early detection of FH is crucial. However, in Europe, less than 10% of people living with FH are diagnosed and even less receive life-saving treatment. The Prague Declaration is a call to action for national and European Union policymakers and decision-makers and a result of the Czech EU Presidency meeting on FH Paediatric Screening (early detection of inherited high cholesterol) at the Czech Senate in Prague on 6th September 2022. It builds on a considerable body of evidence which was discussed at the Technical Meeting under the auspices of the Slovenian EU Presidency in October 2021. The Prague meeting addressed the outstanding barriers to the systematic implementation of FH paediatric screening across Europe. In this article, we present the key points from the Prague meeting and concrete actions needed to move forward.
Date Issued
2022-09-30
Date Acceptance
2022-09-01
Citation
GMS Health Innovations and Technologies, 2022, 16 (1), pp.1-8
ISSN
2698-6388
Publisher
German Medical Science
Start Page
1
End Page
8
Journal / Book Title
GMS Health Innovations and Technologies
Volume
16
Issue
1
Copyright Statement
©2022 Bedlington et al. This is an Open Access article distributed under the terms of the Creative Commons Attribution 4.0 License. See license information at http://creativecommons.org/licenses/by/4.0/.
License URL
Identifier
https://www.ncbi.nlm.nih.gov/pubmed/36311985
PII: hta000136
Subjects
cardiovascular disease
cardiovascular health
children
CVD
CVH
declaration
EU
EU best practice
Europe
familial hypercholesterolaemia
FH
health systems
implementation
prevention
public health
screening
Publication Status
Published
Coverage Spatial
Germany
Date Publish Online
2022-09-30