Needs of head and neck cancer patients and stakeholders: case study
File(s)
Published version
Author(s)
Karampela, Maria
Porat, Talya
Mylonopoulou, Vasiliki
Isomursu, Minna
Type
Journal Article
Abstract
Background: The incidents of Head and Neck cancer (HNC) are rising worldwide, suggesting that this type of cancer is becoming more common. The foreseen growth of incidents signifies that future rehabilitation services will have to meet the needs of a wider population. Objective: The aim of this paperis to explore the needs of patients, caregivers and healthcare professionals during HNC rehabilitation. Methods:This paper reports the empirical findings from a case study that was conducted in a cancer rehabilitation center in Copenhagen to elicit the needs of HNC cancer patients, informal caregivers and healthcare professionals. Results: Four areas of needs during the rehabilitation process were identified: service delivery, emotional, social and physicalneeds. Service delivery needs and emotional needs have been identified as the most prevalent. Conclusions: Stakeholders’ needs during the rehabilitation process were found to be interrelated. All stakeholders faced service delivery challenges in the form of provision and distribution of information, including responsibilities allocation between municipalities, hospitals and rehabilitation services. Emotional andsocial needs have been reported by HNC patients and informal caregivers, underlining the importance of inclusion of all actors in the design of future healthcare interventions.Connected Health (CH) solutions could be valuable in provision and distribution of information.
Date Issued
2021-09
Date Acceptance
2021-08-25
Citation
Frontiers in Oncology, 2021, 11, pp.1-14
ISSN
2234-943X
Publisher
Frontiers Media
Start Page
1
End Page
14
Journal / Book Title
Frontiers in Oncology
Volume
11
Copyright Statement
© 2021 Karampela, Porat, Mylonopoulou and Isomursu. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
License URL
Identifier
https://www.frontiersin.org/articles/10.3389/fonc.2021.670790/full
Subjects
Science & Technology
Life Sciences & Biomedicine
Oncology
connected health (CH)
head and neck cancer
stakeholders
informal caregivers
rehabilitation
QUALITY-OF-LIFE
PROPHYLACTIC SWALLOWING EXERCISES
SUPPORT NEEDS
HEALTH-CARE
FAMILY CAREGIVERS
SOCIAL SUPPORT
META-SYNTHESIS
UNMET NEEDS
INFORMATION
PERCEPTIONS
connected health (CH)
head and neck cancer
informal caregivers
rehabilitation
stakeholders
1112 Oncology and Carcinogenesis
Publication Status
Published
Date Publish Online
2021-09-24