Co-design of guidance for patient and public involvement in psychedelic research
File(s)fpsyt-12-727496.pdf (1.12 MB)
Published version
Author(s)
Type
Journal Article
Abstract
Within the context of scientific research, patient and public involvement (PPI) is defined as research performed ‘with’ or ‘by’ patients and members of the public, rather than ‘to’, ‘about’ or ‘for’ them. When carried out systematically and thoughtfully, PPI has the potential to strengthen the quality and impact of research by fostering accountability, transparency, and relevance. There exist numerous guidelines, frameworks and tools for supporting PPI, however, these do not account for the unique challenges faced in psychedelic research. This paper describes the co-design of guidance intended to help build, evaluate and improve PPI in psychedelic research. A steering group was formed to design and run a co-design workshop alongside public collaborators. Insights from this workshop were analysed and refined into a comprehensive and readily usable guide for planning PPI specific to the field of psychedelic research. Core values emerging from the process focused on the essential importance of trust, learning, purpose and inclusivity. It is hoped that this guidance will be a starting point for incorporating PPI in future psychedelic research, so that it can grow and adapt as this burgeoning field of research progresses.
Date Issued
2021-09-30
Date Acceptance
2021-09-06
ISSN
1664-0640
Publisher
Frontiers Media
Start Page
1
End Page
10
Journal / Book Title
Frontiers in Psychiatry
Volume
12
Copyright Statement
© 2021 Close, Bornemann, Piggin, Jayacodi, Luan, Carhart-Harris and Spriggs. This is an open-access article distributed under the terms of the Creative Commons Attribution License (CC BY). The use, distribution or reproduction in other forums is permitted, provided the original author(s) and the copyright owner(s) are credited and that the original publication in this journal is cited, in accordance with accepted academic practice. No use, distribution or reproduction is permitted which does not comply with these terms.
Identifier
https://www.frontiersin.org/articles/10.3389/fpsyt.2021.727496/full
Subjects
1103 Clinical Sciences
1117 Public Health and Health Services
1701 Psychology
Publication Status
Published
Article Number
727496
Date Publish Online
2021-09-30