Impact of COVID-19 restrictions on carers of persons with dementia in the UK: a qualitative study
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Published version
Author(s)
Sriram, Vimal
Jenkinson, Crispin
Peters, Michele
Type
Journal Article
Abstract
Background
informal carers provide the majority of the support for persons with dementia living at home. Restrictions imposed due to COVID-19 have had a profound impact on the daily life of the entire population. This study provides insight into the impact of these restrictions on carers of people with dementia living at home.
Design
qualitative semi-structured interviews.
Participants
purposive sample of carers who provide at least 10 hours of care a week for the person with dementia living at home.
Setting
UK.
Results
twenty-three carers were interviewed, and thematic analysis identified three main themes—Changes to daily life, impact on carer health and wellbeing and reduced support from health and social support networks. The results highlight the impact of restrictions imposed on daily life and routines due to the pandemic, wellbeing of carers, reduced social support, lack of access to health and care professionals and respite for carers. The restrictions have had negative consequences on carers’ wellbeing, and they have experienced difficulties in accessing formal care services and respite care.
Conclusion
carers attempt to continue to provide physical, emotional and practical support for persons with dementia in the community throughout the COVID-19 restrictions. To prevent a future carer crisis, carers need better support systems including formal carer services, telecare solutions that work for them and additional support for respite, as the restrictions from this pandemic continue.
informal carers provide the majority of the support for persons with dementia living at home. Restrictions imposed due to COVID-19 have had a profound impact on the daily life of the entire population. This study provides insight into the impact of these restrictions on carers of people with dementia living at home.
Design
qualitative semi-structured interviews.
Participants
purposive sample of carers who provide at least 10 hours of care a week for the person with dementia living at home.
Setting
UK.
Results
twenty-three carers were interviewed, and thematic analysis identified three main themes—Changes to daily life, impact on carer health and wellbeing and reduced support from health and social support networks. The results highlight the impact of restrictions imposed on daily life and routines due to the pandemic, wellbeing of carers, reduced social support, lack of access to health and care professionals and respite for carers. The restrictions have had negative consequences on carers’ wellbeing, and they have experienced difficulties in accessing formal care services and respite care.
Conclusion
carers attempt to continue to provide physical, emotional and practical support for persons with dementia in the community throughout the COVID-19 restrictions. To prevent a future carer crisis, carers need better support systems including formal carer services, telecare solutions that work for them and additional support for respite, as the restrictions from this pandemic continue.
Date Issued
2021-11
Date Acceptance
2021-06-20
Citation
Age and Ageing, 2021, 50 (6), pp.1876-1885
ISSN
0002-0729
Publisher
Oxford University Press
Start Page
1876
End Page
1885
Journal / Book Title
Age and Ageing
Volume
50
Issue
6
Copyright Statement
© The Author(s) 2021. Published by Oxford University Press on behalf of the British Geriatrics Society. All rights reserved. For permissions, please email: journals.permissions@oup.com
This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
This is an Open Access article distributed under the terms of the Creative Commons Attribution Non-Commercial License (https://creativecommons.org/licenses/by-nc/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited. For commercial re-use, please contact journals.permissions@oup.com
License URL
Identifier
https://www.ncbi.nlm.nih.gov/pubmed/34224555
Subjects
Caregivers
COVID-19
Dementia
Humans
SARS-CoV-2
United Kingdom
Carer
COVID-19
dementia
older people
qualitative
thematic analysis
Publication Status
Published
Coverage Spatial
England
Date Publish Online
2021-07-05