UK medical cannabis registry: a patient evaluation
File(s)UK Medical Cannabis Registry A Patient Evaluation.pdf (1.23 MB)
Published version
Author(s)
Tait, James
Erridge, Simon
Sodergren, Mikael H
Type
Journal Article
Abstract
The UK Medical Cannabis Registry is the largest real world data platform for medical cannabis outcomes in the UK, providing insight into clinical outcomes and monitoring safety of this novel therapy. This study aims to assess the functionality and accessibility of the online data collection platform and patient priorities for future research. Descriptive statistics were used to analyze quantitative data. For open-ended questions an inductive thematic analysis was performed. 600 responses were recorded. 554 (92.3%) patients had used the platform. 272 (90.4%) patients believed it was easy to input medications. 52 (8.67%) patients recorded an adverse event with 38 (73.1%) finding it easy to record. 535 (96.6%) patients had completed health questionnaires with 490 (91.6%) patients finding this easy to do. 553 (92.2%) patients agreed that contributing to the registry would impact the medical care of future patients. 'Assessing the impact of medical cannabis on quality of life generally' was the top research priority for 357 (59.3%) patients. This study demonstrates that most enrolled patients found the platform easy to use and believed they were positively impacting future medical cannabis patient care. Future patient research priorities included assessment of quality of life and condition-specific outcomes.
Date Issued
2023-02-10
Date Acceptance
2022-08-31
Citation
Journal of Pain and Palliative Care Pharmacotherapy, 2023, 37 (2), pp.170-177
ISSN
0742-969X
Publisher
Taylor and Francis Group
Start Page
170
End Page
177
Journal / Book Title
Journal of Pain and Palliative Care Pharmacotherapy
Volume
37
Issue
2
Copyright Statement
© 2023 The Author(s). Published with license by Taylor & Francis Group, LLC.
This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.
This is an Open Access article distributed under the terms of the Creative Commons Attribution-NonCommercial-NoDerivatives License (http://creativecommons.org/licenses/by-nc-nd/4.0/), which permits non-commercial re-use, distribution, and reproduction in any medium, provided the original work is properly cited, and is not altered, transformed, or built upon in any way.
License URL
Identifier
https://www.ncbi.nlm.nih.gov/pubmed/36762986
Subjects
cannabinoids
Cannabis
medical cannabis
research priorities
Publication Status
Published
Coverage Spatial
England
Date Publish Online
2023-02-10