Pediatric to adult transition care in neurogastroenterology and motility: a position paper from the American neurogastroenterology and motility society and European society of neurogastroenterology and motility
Author(s)
Type
Journal Article
Abstract
Transition services—programs that support adolescents and young adults (AYAs) as they move from a child-centered to a more autonomous, adult-orientated healthcare system—have been associated with improved short- and long-term healthcare outcomes. Unfortunately, there is a paucity of evidence exploring transition services within the neurogastroenterology and motility (NGM) field. The overall aim of this article, endorsed by the American Neurogastroenterology and Motility Society and European Society of Neurogastroenterology and Motility, is to promote a discussion about the role of transition services for patients with NGM disorders. The AYAs addressed herein are those who have: (a) a ROME positive disorder of gut–brain interaction (DGBI), (b) a primary or secondary motility disorder (including those with motility disorders that have been surgically managed), or (c) an artificial feeding requirement (parenteral or enteral tube feeding) to manage malnutrition secondary to categories (a) or (b). The issues explored in this position paper include the specific physical and psychological healthcare needs of patients with NGM disorders; key healthcare professionals who should form part of a secondary care NGM transition service; the triadic relationship between healthcare professionals, caregivers, and patients; approaches to selecting patients who may benefit most from transition care; methods to assess transition readiness; and strategies with which to facilitate transfer of care between healthcare professionals. Key areas for future research are also addressed, including the construction of NGM-specific transition readiness questionnaires, tools to assess post-transfer healthcare outcomes, and educational programs to train healthcare professionals about transition care in NGM.
Date Issued
2024-10-01
Date Acceptance
2024-07-02
Citation
Neurogastroenterology and Motility, 2024, 36 (10)
ISSN
1350-1925
Publisher
Wiley
Journal / Book Title
Neurogastroenterology and Motility
Volume
36
Issue
10
Copyright Statement
© 2024 The Author(s). Neurogastroenterology & Motility published by John Wiley & Sons Ltd. This is an open access article under the terms of the Creative Commons Attribution License, which permits use, distribution and reproduction in any medium, provided the original work is properly cited.
License URL
Identifier
https://www.ncbi.nlm.nih.gov/pubmed/39038114
Subjects
ADOLESCENTS
CHILDHOOD
CHILDREN
Clinical Neurology
COGNITIVE-BEHAVIORAL THERAPY
disorder of gut-brain interaction
FUNCTIONAL ABDOMINAL-PAIN
GASTROENTEROLOGY
Gastroenterology & Hepatology
GASTROINTESTINAL DISORDERS
INFLAMMATORY-BOWEL-DISEASE
Life Sciences & Biomedicine
neurogastroenterology
Neurosciences
Neurosciences & Neurology
PATIENT
pediatrics
QUALITY-OF-LIFE
Science & Technology
transition clinic
Publication Status
Published
Coverage Spatial
England
Article Number
e14869
Date Publish Online
2024-07-22