The Self-Management Abilities Test (SMAT): a tool to identify the self-management abilities of adults with bronchiectasis
File(s)
Published version
Author(s)
Smalley, katelyn
Aufegger, lisa
Flott, kelsey
Mayer, Erik
Darzi, ara
Type
Journal Article
Abstract
Bronchiectasis is an increasingly common chronic respiratory disease which requires a high level of patient engagement in self-management. Whilst the need for self-management has been recognised, the knowledge and skills needed to do so – and the extent to which patients possess these – has not been well-specified. On one hand, understanding the gaps in people’s knowledge and skills can enable better targeting of self-management supports. On the other, clarity about what they do know can increase patients’ confidence to self-manage. This study aims to develop an assessment of patients’ ability to self-manage effectively, through a consensus-building process with patients, clinicians, and policymakers. The study employs a modified, online 3-round Delphi to solicit the opinions of patients, clinicians, and policymakers (N=30) with experience of bronchiectasis. The first round seeks consensus on the content domains for an assessment of bronchiectasis self-management ability. Subsequent rounds propose and refine multiple-choice assessment items to address the agreed domains. A group of 10 clinicians, 10 patients, and 10 policymakers provide both qualitative and quantitative feedback. Consensus is determined using content validity ratios. Qualitative feedback is analysed using the summative content analysis method. Overarching domains are: General Health Knowledge, Bronchiectasis-Specific Knowledge, Symptom Management, Communication, and Addressing Deterioration, each with two sub-domains. A final assessment tool of 20 items contains two items addressing each sub-domain. This study establishes that there is broad consensus about the knowledge and skills required to self-manage bronchiectasis effectively, across stakeholder groups. The output of the study is an assessment tool that can be used by patients and their healthcare providers to guide the provision of self-management education, opportunities, and support.
Date Issued
2022-01-14
Date Acceptance
2021-10-27
Citation
npj Primary Care Respiratory Medicine, 2022, 32 (3), pp.1-7
ISSN
2055-1010
Publisher
Nature Research
Start Page
1
End Page
7
Journal / Book Title
npj Primary Care Respiratory Medicine
Volume
32
Issue
3
Copyright Statement
© Crown 2022. Open Access This article is licensed under a Creative Commons Attribution 4.0 International License, which permits use, sharing, adaptation, distribution and reproduction in any medium or format, as long as you give appropriate credit to the original author(s) and the source, provide a link to the Creative Commons license, and indicate if changes were made. The images or other third party material in this article are included in the article’s Creative Commons license, unless indicated otherwise in a credit line to the material. If material is not included in the article’s Creative Commons license and your intended use is not permitted by statutory regulation or exceeds the permitted use, you will need to obtain permission directly from the copyright holder. To view a copy of this license, visit http://creativecommons.org/licenses/by/4.0/.
License URL
Sponsor
Imperial College Healthcare NHS Trust- BRC Funding
National Institute for Health Research
Imperial College Healthcare NHS Trust- BRC Funding
Identifier
https://www.nature.com/articles/s41533-021-00265-5
Grant Number
RDB04
n/a
RDF01
Subjects
Science & Technology
Life Sciences & Biomedicine
Primary Health Care
Respiratory System
General & Internal Medicine
DELPHI TECHNIQUE
CHRONIC DISEASE
EDUCATION
PATIENT
QUESTIONNAIRE
VALIDATION
CONSENSUS
TAXONOMY
PEOPLE
Publication Status
Published
Date Publish Online
2022-01-14