What happens when you ask for feedback? Anticipating and addressing challenges can be effective for eliciting parents' views about their critically ill child's retrieval to paediatric intensive care
Author(s)
Barber, Victoria
Evans, Ruth
Ramnarayan, Padmanabhan
Wray, Jo
Type
Journal Article
Abstract
User feedback is an important element of health-service evaluation and can be used to improve services but can be difficult to obtain, particularly in acute care situations. As part of a national study, we explored stakeholders’ perspectives on paediatric critical care retrieval processes through questionnaires and interviews. Obtaining feedback in a highly charged, stressful and busy paediatric intensive care unit (PICU) environment is fraught with difficulties so we aimed to optimise each stage of data collection by being both proactive and reactive. Patient and public involvement occurred throughout and engagement with sites and supporting local research staff to approach and recruit families were prioritised. High-quality study materials were developed to reduce local staff burden and promote and maintain study awareness. We describe strategies used and what worked/did not work. We suggest approaches for optimising elicitation of parents’ experiences in difficult circumstances, highlighting the importance of engagement and commitment of PICU staff.
Date Issued
2023-01-01
Date Acceptance
2023-01-01
Citation
Journal of Patient Experience, 2023, 10
ISSN
2374-3735
Publisher
SAGE Publishing
Journal / Book Title
Journal of Patient Experience
Volume
10
Copyright Statement
© The Author(s) 2023. This article is distributed under the terms of the Creative Commons Attribution-NonCommercial 4.0 License (https://creativecommons.org/licenses/by-nc/4.0/) which permits non-commercial use, reproduction and distribution of the work without further permission provided the original work is attributed as specified on the SAGE and Open Access page (https://us.sagepub.com/en-us/nam/open-access-at-sage).
License URL
Identifier
https://www.ncbi.nlm.nih.gov/pubmed/36741824
PII: 10.1177_23743735221143949
Subjects
EXPERIENCE
Health Care Sciences & Services
intensive care
Life Sciences & Biomedicine
paediatrics
retrieval service
Science & Technology
service user feedback
TRIAL
WEB
Publication Status
Published
Coverage Spatial
United States
Article Number
23743735221143949
Date Publish Online
2023-01-23