Persons with Epilepsy: Between Social Inclusion and Marginalisation
File(s)
Author(s)
Mlinar, S
Petek, D
Cotic, Z
Ceplak, MM
Zaletel, M
Type
Journal Article
Abstract
Background. Epilepsy is a chronic neurological disorder that can lead to complex psychosocial consequences. Epilepsy can change the social status of persons with epilepsy (PWE) and has an effect on their social inclusion as well as their perception of social inclusion. This study aims to explore subjective experiences with social inclusion of PWE in Slovenia. Methods. This study takes a qualitative approach. Eleven semistructured interviews were conducted with eleven participants. Interviews were analysed using thematic analysis. Results. Epilepsy has physical, emotional, and social consequences. Physical consequences of epilepsy are mainly tiredness and exhaustion following an epileptic episode, frequently accompanied by headaches. Emotional consequences are different forms of fear. The main social consequence identified is a negative effect on PWE’s social network, which leads to (self-)isolation and social distrust. Conclusion. PWE experience of social inclusion depends on various psychosocial factors and differs from person to person. The consequences of epilepsy are shown in PWE social contacts and their sense of social inclusion and autonomy.
Date Issued
2016-04-01
Date Acceptance
2016-03-17
Citation
Behavioural Neurology, 2016, 2016
ISSN
0953-4180
Publisher
Hindawi Publishing Corporation
Journal / Book Title
Behavioural Neurology
Volume
2016
Copyright Statement
© 2016 Simona Mlinar et al. This is an open access article distributed under the Creative Commons Attribution License, which permits unrestricted use, distribution, and reproduction in any medium, provided the original work is properly cited.
License URL
Subjects
Science & Technology
Life Sciences & Biomedicine
Clinical Neurology
Neurosciences & Neurology
QUALITY-OF-LIFE
PEOPLE
STIGMA
PREVALENCE
BURDEN
Experimental Psychology
1109 Neurosciences
1103 Clinical Sciences
1702 Cognitive Science
Publication Status
Published
Article Number
2018509
Date Publish Online
2016-03-17