Humanising health and social care support for people with intellectual and developmental disabilities: Protocol for a scoping review
File(s)
Published version
Author(s)
Meinert, Edward
Type
Journal Article
Abstract
Background:
Healthcare is shifting towards a more person-centred model, however, people with intellectual and developmental disabilities can still experience difficulties in accessing equitable healthcare. Given these difficulties, it is important to consider how principles such as empathy and respect can be best incorporated into health and social care practices for people with intellectual and developmental disabilities, to ensure they are receiving humanising and equitable treatment and support.
Objective:
The purpose of this scoping review is to provide an overview of the current research landscape and knowledge gaps regarding the development and implementation of interventions based on humanising principles that aim to improve health and social care practices for people with intellectual and developmental disabilities.
Methods:
The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) and Population, Intervention, Comparator, Outcome, and Study (PICOS) frameworks will be used to structure the review. Six databases (PubMed, MEDLINE, Embase, CINAHL, PsycInfo, and Web of Science) will be searched for articles published in English in the previous 10 years that describe or evaluate health and social care practice interventions under-pinned by humanising principles of empathy, compassion, dignity, and respect. Two reviewers will collaboratively screen and select references based on the eligibility criteria and extract the data into a predetermined form. A descriptive analysis will be conducted to summarise the results and provide an overview of interventions in three main care areas: health care, social care, and informal social support.
Results:
Results will be included in the scoping review, which will be submitted for publication by June 2022.
Conclusions:
This scoping review will summarize the state of the field of interventions that are using humanising principles to improve health and social care for adults with intellectual and developmental disabilities.
Healthcare is shifting towards a more person-centred model, however, people with intellectual and developmental disabilities can still experience difficulties in accessing equitable healthcare. Given these difficulties, it is important to consider how principles such as empathy and respect can be best incorporated into health and social care practices for people with intellectual and developmental disabilities, to ensure they are receiving humanising and equitable treatment and support.
Objective:
The purpose of this scoping review is to provide an overview of the current research landscape and knowledge gaps regarding the development and implementation of interventions based on humanising principles that aim to improve health and social care practices for people with intellectual and developmental disabilities.
Methods:
The Preferred Reporting Items for Systematic Reviews and Meta-Analyses extension for Scoping Reviews (PRISMA-ScR) and Population, Intervention, Comparator, Outcome, and Study (PICOS) frameworks will be used to structure the review. Six databases (PubMed, MEDLINE, Embase, CINAHL, PsycInfo, and Web of Science) will be searched for articles published in English in the previous 10 years that describe or evaluate health and social care practice interventions under-pinned by humanising principles of empathy, compassion, dignity, and respect. Two reviewers will collaboratively screen and select references based on the eligibility criteria and extract the data into a predetermined form. A descriptive analysis will be conducted to summarise the results and provide an overview of interventions in three main care areas: health care, social care, and informal social support.
Results:
Results will be included in the scoping review, which will be submitted for publication by June 2022.
Conclusions:
This scoping review will summarize the state of the field of interventions that are using humanising principles to improve health and social care for adults with intellectual and developmental disabilities.
Date Issued
2022-05-04
Date Acceptance
2022-03-16
Citation
JMIR Research Protocols, 2022, 11 (5)
ISSN
1929-0748
Publisher
JMIR Publications
Journal / Book Title
JMIR Research Protocols
Volume
11
Issue
5
Copyright Statement
©Madison Milne-Ives, Rohit Shankar, Dan Goodley, Kirsten Lamb, Richard Laugharne, Tracey Harding, Edward Meinert.
Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 04.05.2022. This is an open-access article
distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which
permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR
Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on
https://www.researchprotocols.org, as well as this copyright and license information must be included.
Originally published in JMIR Research Protocols (https://www.researchprotocols.org), 04.05.2022. This is an open-access article
distributed under the terms of the Creative Commons Attribution License (https://creativecommons.org/licenses/by/4.0/), which
permits unrestricted use, distribution, and reproduction in any medium, provided the original work, first published in JMIR
Research Protocols, is properly cited. The complete bibliographic information, a link to the original publication on
https://www.researchprotocols.org, as well as this copyright and license information must be included.
License URL
Identifier
https://preprints.jmir.org/preprint/31720/accepted
Subjects
delivery of health care
developmental disabilities
empathy
intellectual disability
patient care management
patient-centered care
respect
social care
social support
social work
1103 Clinical Sciences
1117 Public Health and Health Services
Publication Status
Published
Article Number
ARTN e31720