Survivorship data in prostate cancer: where are we and where do we need to be?
File(s)
Published version
Author(s)
Type
Journal Article
Abstract
Cancer survivorship was recently identified as a prostate cancer (PCa) research priority by PIONEER, a European network of excellence for big data in PCa. Despite being a research priority, cancer survivorship lacks a clear and agreed definition, and there is a distinct paucity of patient-reported outcome (PRO) data available on the subject. Data collection on cancer survivorship depends on the availability and implementation of (validated) routinely collected patient-reported outcome measures (PROMs). There have been recent advances in the availability of such PROMs. For instance, the European Organisation for Research and Treatment of Cancer Quality of Life Group (EORTC QLG) is developing survivorship questionnaires. This provides an excellent first step in improving the data available on cancer survivorship. However, we propose that an agreed, standardised definition of (prostate) cancer survivorship must first be established. Only then can real-world data on survivorship be collected to strengthen our knowledge base. With more men than ever surviving PCa, this type of research is imperative to ensure that the quality of life of these men is considered as much as their quantity of life.
Patient summary
As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data.
Patient summary
As there are more prostate cancer survivors than ever before, research into cancer survivorship is crucial. We highlight the importance of such research and provide recommendations on how to carry it out. The first step should be establishing agreement on a standardised definition of survivorship. From this, patient-reported outcome measures can then be used to collect important survivorship data.
Date Issued
2024-01
Date Acceptance
2023-11-10
Citation
European Urology Open Science, 2024, 59, pp.27-29
ISSN
2666-1683
Publisher
Elsevier
Start Page
27
End Page
29
Journal / Book Title
European Urology Open Science
Volume
59
Copyright Statement
© 2023 The Authors. Published by Elsevier B.V. on behalf of European Association of Urology. This is an open access
article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
article under the CC BY license (http://creativecommons.org/licenses/by/4.0/).
License URL
Identifier
https://www.sciencedirect.com/science/article/pii/S2666168323023157?via%3Dihub
Subjects
Cancer survivorship
Life Sciences & Biomedicine
measures
Patient-reported outcome
Prostate cancer
Quality of life
Science & Technology
Urology & Nephrology
Publication Status
Published
Date Publish Online
2023-12-19